News & Events

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NF Symposium

We will be hosting our annual NF Symposium in the fall of 2026.
Subscribe to our newsletter below for updates on the 2026 Symposium, including early registration and speaker announcements.

A Meaningful Step Forward for Adults Living with NF1

Health Canada has approved Koselugo (selumetinib) for adults living with NF1 who have symptomatic and inoperable plexiform neurofibromas.

Education Award Applications

NF should never stand in the way of opportunity. The next intake for applications closes April 30.

Charity Challenge

The Charity Challenge is an annual event where participants raise funds for local charities while running or walking a 5 km, half marathon, or participating virtually.