Join us at the 2025 Annual Symposium!

Saturday, September 27th
Hilton Hotel Metrotown, Burnaby

Join us for an immersive and empowering experience at the 2025 Symposium, where families impacted by neurofibromatosis (NF) come together once again!

What to Expect:

Prepare to be inspired by a lineup of distinguished speakers hailing from both Canada and the US, all focused on diverse aspects of navigating life with neurofibromatosis. Our event will delve into cutting-edge topics, including advancements in NF skin management, breakthroughs in drug research and clinical trials across Canada and much more.

Your Registration Includes:

  • A delectable hot breakfast, setting the stage for new friendships to
    blossom
  • Captivating guest speakers, delivering valuable information that empowers
  • A catered buffet lunch
  • And many networking oppotunities

Accommodations:

This year’s event is being held at the Hilton Hotel Metrotown Burnaby located at 6083 McKay Avenue. You can book your hotel room by contacting the hotel directly.

Parking:

Hilton Vancouver Metrotown’s underground self-parking is located below the Hotel and Crystal Mall. The parkade is accessible off McKay Avenue and Kingsborough Street. The clearance of the parkade is 6’6”. Offsite parking is available for over-height vehicles and tour buses and must be requested ahead of time.

Transit:

The hotel is located one block from Metrotown Skytrain Station. The 19 and N19 transit lines have routes that pass near Hilton Vancouver Metrotown.

More to Come!

Keep an eye on this page as we update the schedule with confirmed speakers presentations, research breakthroughs, and inspiring stories from the NF community.

Top Five Reasons To Attend This Year's Symposium:

  1. Access the most current and comprehensive information on neurofibromatosis from leading experts.
  2. Discover practical tools and resources to empower your journey and advocate for better care and awareness in the NF community.
  3. Meet and mingle with families who share your journey, fostering a network of support.
  4. Elevate your understanding, relationships, and spirits through a day filled with learning and camaraderie.
  5. Indulge in a sumptuous catered hot breakfast and lunch, satisfying your taste buds while engaging with others.

This year our event will only be presented in a captivating in-person format.

Ticket fees for the symposium help offset the cost of food, AV technology, and CART services (for individuals with hearing impairment).

If the registration fee poses a challenge to your attendance, we encourage you to reach out to our dedicated team at info@tumourfoundation.ca. Limited scholarships are available, specifically designed to assist families facing financial difficulties. Your presence is important to us, and we're here to ensure that everyone can join in this year’s learning opportunity with world-renowned speakers.

What Last Year’s Guests Are Saying About the 2024 Symposium

"Your ability to pack the world’s top NF leaders all into a 9-5 conference was outstanding. I have attended many patient day events and you did a terrific job giving a voice to the NF community."

"I am leaving feeling so inspired!!"

"All the sessions were standout sessions. The speakers were very understanding and passionate about NF.”

“I’ve never had face to face interaction with someone who has NF. Everyone was so kind at your event. We will come again.”

Symposium FAQs

Are tickets refundable.

No, but they're transferable! Share the fun if you can't make it.

Is the location wheelchair accessible?

Absolutely! Your accessibility to our event is crucial, so we picked a venue that's as welcoming as a big hug!

Is there a special hotel rate?

Not this year, as we are not holding the symposium alongside the national leadership event. Most attendees are local and prefer to stay off-site. If you need accommodation recommendations, please contact the hotel directly.

Is my child welcome?

Sure thing! Kids are welcome, but be warned: no babysitting here, and they might
find scientific data as thrilling as bedtime stories. Kids over the age six are charged a
conference registration to cover food costs.

What food options are available?

We've got you covered! Vegan, gluten-free, and all the yummy options. Got a unique
craving? Shoot us a message, and we'll do our best to make it happen!

Is there parking at the venue?

You betcha! The venue offers underground pay-parking accessed via McKay
Avenue and Kingsborough Street. Just a heads-up,-the parkade clearance is 6’6”, so
watch your rooftop antennas! If you're rolling in with an over-height vehicle or a tour
bus make sure to give us a heads-up in advance.

Is the hotel accessible by transit?

Absolutely! The hotel is just a hop, skip, and a jump away from the Metrotown
Skytrain Station—literally one block! Plus, the 19 and N19 transit lines swing by,
making it a breeze to reach the Hilton Vancouver Metrotown.

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